Having a disabled, or special needs child, we don’t often have the normal moments that most new parents have. Instead of the bond that mother and child have through breastfeeding, we have a machine that feeds James. We don’t have a baby that cries us awake in the middle of…
James had an EEG this morning to test for this new “quirk” he started doing last week. We’re calling it a quirk because we don’t know what they are. When we saw the neurologist on Monday, we tried to describe them the best we could. We said that James throws…
I would love to meet whoever coined the phrase “just take one day at a time” and put them in our shoes for 48 hours. I would be curious to see if they would modify it for those with disabled children. Let me give you a brief update of all…
Last night Stacy posted this on Facebook: “To my friends... so much is going on with James that I am trying not to go to a bad place. We need all your thoughts and prayers to make James better... he will never be "normal" but we will do the best…
How many of you send out picture cards for Christmas? This was something that Stacy and I started to do after we got married, and now it was James’ turn to take part in this tradition. Unfortunately, James ended up in the hospital shortly after Thanksgiving with respiratory issues so…
On Friday, November 27th, the day after Thanksgiving, James had an appointment with his pediatrician and got three vaccinations: Rotavirus, Hib (Haemophilus influenza type b) and IPV (Inactivated poliovirus). By Saturday James had mucus constantly running out of his nose. For a while, we just couldn’t keep up with suctioning;…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…