*Updated April 2, 2010 with notes from neurologist.* We went to see a neurologist at the Children’s Memorial Hospital Epilepsy Center in Chicago. She was recommended by Stacy’s Dad’s cousin who is a neurologist at Boston Children’s Hospital. We were just looking for another opinion about James to make sure…
Stacy posted something on Facebook today and I thought I would share. I don’t know where she got it from or who originally wrote it. For those of you that don’t know, Stacy and I lost our first son to Trisomy 18 before he was born. We never got a…
We took James to the pediatrician this morning for his 7-month checkup. He weighed in at 14 pounds and 15 ounces. Almost 15 pounds! The pediatrician thinks James has an infection in his left ear so he prescribed Cefdinir for 10 days. In a post a couple of weeks ago…
A friend of mine shared something on Facebook that I wanted to pass on: Check out this link. The health sector spent:$544,367,861 on lobbying for health care. Wouldn't that money be better served on helping the American public (8 lobbyists per member of Congress). I have a little friend, James…
James had another EEG today to see if the ACTH injections are working. Unfortunately, the EEG showed only a little progress, so the neurologist wants to increase the dose from 0.50 mg to 0.75 mg once a day. We’ll follow up in another two weeks to see if the increased…
James has been getting really good at lifting his head. This may not be a big deal for most parents, but this is a big deal for us! The video below is about 6 minutes long; he first four minutes is me assisting him in lifting his head. At around…
As part of early intervention (EI) in the state of Illinois, James gets many therapies. For occupational (OT), physical (PT), and vision therapies, the therapists come to the house, which is really nice. Unfortunately, they don’t have a speech therapist that comes to the house, so James has to go…