Tomorrow is May 1st which is the start of Stroke Awareness Month. Did you know that in 2008 stroke was the fourth leading cause of death in the United States, accounting for 133,750 deaths? When we think about someone having a stroke, we usually picture an older person. My dad…
No matter how bad things may seem, they can always be worse. And no matter how bad you think your life is, there is somebody that has it worse off than you. Please take a moment and reread those first two sentences. Now stop and think about those sentences for…
I heard a song today that I’ve probably heard a hundred times before, but today it got me thinking. The song “Don’t Laugh at Me” by Mark Wills talks about being different and how other people see you and asks that you don’t laugh at them. James is a lot…
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James had a couple of doctor appointments today. He went to see the gastroenterologist to get a new Mic-Key button put in. The Mic-Key button is James’ g-tube that he uses for feeding. Stacy said that the process to remove the old one and put in the new one is…
I didn’t realize this until we had James, but being a mom is a lot of work. I don’t think I have given my own mom enough credit for everything that she did when me and my sister were growing up. I kind of think that I took her for…
James is now completely weaned off of ACTH. Unfortunately, it did not work for him. There was very little change in his infantile spasms. We were originally going to switch to Sabril/vigabatrin, but after reading over the paperwork that we had to sign before he could start taking it, we…