A few weeks ago, we found out that James has something called auditory neuropathy which is basically a disconnect between his ears and his brain. His ears can detect sounds, but those sounds don’t make it from the ears to the brain. Stacy found a video on YouTube that is…
Back in January, I was messing around trying to come up with something to help straighten James' wrists. Because of his cerebral palsy or his muscle tone, his wrists curl in. You can see the makeshift wrist splint I made on this blog post. I tried, but they didn’t work…
Most of our family is local, or local-ish which is nice. There are a few people on Stacy’s mom’s side that live in adjoining states that hadn’t met James yet. We had a get together today so they could finally meet him. They knew about James and his medical issues…
A few weeks ago, James went to see a neuro eye doctor. One of the doctor's recommendations was to schedule a Visual Evoked Potential test with neurology. We took James to have this test done today. For the Visual Evoked Potential test, or VEP, they attached electrodes to James' head…
Did the title of this post pique your interest? Sorry. I am a little tired and wasn’t sure how to title this post so I just wrote the first thing that came to mind. When James was born, one of his testes wasn’t descended into the scrotum. One of his…
Stacy found a song/video on YouTube that really hits home. The song is "The Life That’s Chosen Me," written by Karen Taylor-Good and Lisa Aschmann. It’s about having a child with special needs. In my Father's Day post, I shared similar thoughts/feelings that she shares in the first verse: We…
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