Family Pictures May 2010

Because of all James’ medical issues, and not knowing how long he will be with us, Stacy thought it would be nice to have some family pictures taken. She found a photographer that came to our condo and took a lot of really nice pictures. Too many to share here,…

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Not a Candidate for Brain Surgery

Stacy had reached out to a doctor in Michigan who does brain surgery to control seizures to see if he thought that James might benefit from surgery. He sent her a message this evening and unfortunately, James is not a candidate for any kind of surgery. We kind of had…

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Appointment with Nephrologist

A couple of days ago we noticed that James’ pee was a little more diluted (clear) instead of its usual yellow color so Stacy called the pediatrician to see if it was anything to be concerned about. He asked us to bring in a urine sample for him to look…

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Another Adjustment to Infantile Spasm Meds

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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You Find Out Who Your True Friend Are

I stole this from Stacy’s Facebook: “Something I've learned since James has been born...you really find who your true friends are when your life changes! Whether they stick around with the change or they drop like flies because it's too much for them! Oh well!!”Stacy For those of you that…

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First Haircut

James had his first haircut today. I don’t remember my first haircut, but I have seen the pictures. I was sitting in a highchair in my grandma’s basement. Since James isn’t able to sit up on his own and can’t hold his head up, putting him in a highchair wasn’t…

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Appointment with Audiologist

When James was in the NICU they tried to test his hearing on several occasions. For various reasons (possible interference with medical equipment, too many distractions with the machines beeping), they were never able to get any results from any of the hearing tests. After the third or fourth failed…

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