James is now completely weaned off of ACTH. Unfortunately, it did not work for him. There was very little change in his infantile spasms. We were originally going to switch to Sabril/vigabatrin, but after reading over the paperwork that we had to sign before he could start taking it, we…
Since we’ve become part of the ‘special needs community’, we frequently come across special needs related stuff that we would otherwise just scroll right past. I guess it’s kind of like when you’re looking for a new car and like a certain make and model. Then you start seeing them…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
James had surgery today to have tubes put in his ears. If you don’t know what ear tubes are, they are small, okay tiny, hollow plastic cylinders that are surgically inserted into the eardrum. It essentially opens up the passageway in the middle ear and helps prevent the buildup of…
*Updated Sunday, April 4th, 2010* Every year since I was born, I would go up to Lake Lawn Lodge in Delavan, Wisconsin for Easter weekend with my family. We would drive up on Good Friday, spend the night Friday and Saturday, and drive home on Sunday. It’s been a family…