EEG to See if ACTH is Working

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Thank You NICU Nurses

Stacy found the below video on YouTube and we wanted to take a moment to say thank you to all of the NICU nurses out there. The nurses that James had in the NICU were awesome. We can’t even begin to explain how thankful we are to them for the…

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Read more about the article Every Day is a Gift
Stacy and James

Every Day is a Gift

My biological mother was just 16 years old when she became pregnant with me and had a choice to make: terminate the pregnancy or put me up for adoption. She obviously chose option #2 and put me up for adoption. My adoptive parents never kept my adoption a secret. I…

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James Has Gone Social

Stacy and I have been sharing updates about James with our family and friends on our personal Facebook pages since he was born. It’s an easy way to share quick updates about what is going on with him. We have received so many comments and so much support from those…

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Life is Not Fair

Please excuse me while I vent for a moment. I'm sure we've all heard someone say something about life not being fair for one reason or another. Maybe they didn't get a good grade on a paper they worked so hard on. Or they didn't get the job promotion they…

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Late Night Home Health Delivery

So last night around 10:30 pm, we were awoken by James making noises through the baby monitor. I got up to see what was going on. He was having some of his spasms. But instead of the usual one or two, it was a large cluster of them. They seemed…

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Read more about the article Another Night in the Hospital
James helping with a breathing treatment

Another Night in the Hospital

Is this ever going to get any easier? What are we doing wrong?! If you’ve been following James' story, you know that James has been in the hospital a couple of times for respiratory distress. We’ve been trying our best to care for him at home, but sometimes it feels…

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