Are you fricking kidding me?! Fricking was not the word I wanted to use, but I thought I should keep it clean. I really wanted to use another “F” word…and a few other four-letter words. Before I get into why I started this post with such strong language, let me…
When James was discharged from the NICU and was finally able to go home, we received a bunch of equipment from home health. Everything James needed to survive outside the hospital: pulse oximeter (pulse ox) that constantly monitors the oxygen saturations in his blood as well as his heartrate; feeding…
Well, crap! James had an appointment with his neurologist today and when Stacy showed him the video of James’ "quirks", he thought they looked like infantile spasms and wants to treat them as such until we get a confirmation EEG. Wait a minute! Let’s back up for a second. On…
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Stacy posted this on Facebook last night: “My wish for 2010 is that people will understand that children with disabilities do not have a disease; children with disabilities are not looking for a cure but ACCEPTANCE........93% of people won't copy and paste this, WILL... YOU be one of the 7%…
This is going to be a really short post, but I had to share. I happened to catch Stacy and James napping in our bed. How cute are they? Love these two.
This poor kid (and his parents) just can’t catch a break. Here we go for another hospital stay. But before I get to that, I should probably fill you in with some back story in case you haven’t read the First Trip to the ER post. Even if you did…