A few weeks ago, on September 8th, James was fitted for his first pair of AFOs. An AFO, or ankle-foot orthotic, is basically a foot & ankle brace. I was trying to find a good picture of his feet and the picture below is the best recent picture that I…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
James had vision therapy for the first time since being on Sabril. Stacy said he seemed so much more alert and responsive. I wish I could have been there to witness it in person, but thankfully Stacy took some videos to show me. I will post the videos below. It…
I just wanted to take a moment to wish Stacy a Happy 6th Anniversary. Although the past year has been a bit of a whirlwind with lots of stress, there is nobody I would rather be going through this than with you. I fell in love with you the moment…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
September 15th is NICU appreciation day and we wanted to send a special shoutout to the NICU nurses that took care of James for the first two months of his life. We can’t possibly thank you enough for all that you did for him, and for us. You didn’t just…
One thing that Stacy and I are starting to realize is that it’s hard to find a babysitter for James. It’s not like having a normal kid that just needs be fed, have an occasional diaper change, and be entertained. James requires so much more than that. He needs to…