Read more about the article Working Hard at School (and at Home)
Enjoying the weather outside with his teacher and their classroom guinea pig

Working Hard at School (and at Home)

James is our little rockstar. We don’t know what changed this school year, but he’s making some awesome progress in physical therapy. Even at home when he isn’t required to work, he still shows us what he can do. I should probably put a little bit of a disclaimer in…

Comments Off on Working Hard at School (and at Home)
Read more about the article New Pulmonologist and James Has a Runner
James using the arch we bought him for his birthday

New Pulmonologist and James Has a Runner

We had a very good meeting with a new pulmonologist on Thursday. He was very thorough, informative, and has put together a plan of action. His recommendation is to stop giving James one of the meds he is taking to help manage his secretions and instead use this special patch.…

Comments Off on New Pulmonologist and James Has a Runner
Read more about the article Back to School for the Birthday Boy
The first day of his second year of preschool

Back to School for the Birthday Boy

James went back to school on Tuesday for his second year of preschool…or did he?     We have no idea how he was able to skip so many grades with all the school that he missed because he was out sick, but he is in Jr. High now.  …

Comments Off on Back to School for the Birthday Boy