Read more about the article A Reverse House Call?
James' first school photo

A Reverse House Call?

Reverse House Call? So, this is a new one. Have you ever watched an old TV show where the doctor makes house calls? Yesterday we did something similar, but in reverse. Instead of the doctor coming to our house, we went to the doctor’s house. Would that be called a…

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Read more about the article Back to School…Again!
Clifford Day

Back to School…Again!

After spending last week home from school recovering from his latest illness, we decided to send James back to school this week. We finally got some decent weather on Monday, so Stacy took James for a walk around the block after school. She thought getting James out of the house…

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Read more about the article Trip to the ER, a Short Hospital Stay, and a VEEG
James in the hospital 4/14/2013

Trip to the ER, a Short Hospital Stay, and a VEEG

We tried. We really did. But we just couldn’t keep James out of the hospital. On Thursday, the 11th, he woke up really juicy and congested. I know, it sounds odd, doesn’t it? How can somebody be juicy and congested at the same time? I guess it’s one of James’…

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Read more about the article April Fools’, Doctor Appointments, Pulse Ox Recall, Photo Shoot, and a New Fundraiser
James dressed up like a teacher

April Fools’, Doctor Appointments, Pulse Ox Recall, Photo Shoot, and a New Fundraiser

April Fools' Day After James’ bad reaction to the generic breathing treatment last weekend, we weren’t sure what the beginning of this week was going to be like. We questioned if we should send him to school or let him relax at home for a few days. He was back…

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Read more about the article Easter 2013
James with the Easter Bunny

Easter 2013

  This is how our week started:     The picture above shows James’ pulse ox numbers on Monday evening. The top number is the oxygen saturation of his blood (sats), which isn’t concerning. That’s a decent number. What is concerning is the bottom number, which is his heart rate…171…

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Read more about the article Another Fever and a Birthday Invite
James on his cooling mat

Another Fever and a Birthday Invite

Fever We’re starting to think that James is allergic to school or something. He started preschool in early September. He got sick shortly after he had his VNS implanted in late September, so we decided to keep him home from school sometime in October and finally sent him back to…

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Read more about the article Back to School and Nominated to Win a Van
Counting cotton balls at school

Back to School and Nominated to Win a Van

Back to School After taking a few months off to fight an illness, James finally went back to school on Monday. Because of all the care that James needs, the school district provides a one-on-one nurse for him. This nurse is not a district employee. Instead, they use a nursing…

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