Last year, we went to Nashville for Spring Break, and while we don’t normally go to the same place two years in a row, we found ourselves back in Nashville again this year…for a couple of days anyway. The original plan was to spend the entire vacation in Pigeon Forge,…
This is the second part of the Cerebral Palsy Awareness Month daily facts that Stacy has been sharing on James’ Facebook page and will include the daily facts for days 16 through 31. If you missed the first part that covered days 1 through 15, you can view it here.…
March is Cerebral Palsy Awareness Month. If you follow James on Facebook, you’ve probably seen the daily CP facts that Stacy has been posting. This is part 1 of 2 of a collection of those posts and will include the first 15 daily facts. I will post part 2 at…
VNS Replacement As I mentioned in my last post, while James was down at Rush Hospital on February 20th and 21st for an overnight VEEG, the neurologist scanned his VNS and noticed that the battery was almost dead. The VNS does not have a replaceable battery; the whole device needs…
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I’ve been trying to stick with the bi-monthly posts, but if things continue to remail uneventful, I may switch it up. We had a couple of notable things happen last week, and absolutely nothing this week. We have a saying in our house… “the calm before the storm.” That simply…
Welcome to 2017. Hope you all had a safe, happy, and healthy holiday. This is going to be a pretty short post because our lives have been pretty uneventful. Healthwise, James is doing okay. We’re still dealing with the seizures and his oxygen saturation levels have been a bit wonky…