VEEG James had been doing annual VEEGs (video EEGs) for many years as a way to look at seizure activity in his brain to see if there were any changes to his meds or VNS that should be made. VEEGs are usually done in the hospital, but we skipped 2019…
This is Part 2 of the daily epilepsy facts that Stacy has been posting on James’ Facebook page, and includes days 16 through 30. If you missed Part 1, or just want to review the first fifteen facts, they can be found here. Stacy is keeping her Epilepsy Awareness…
This will probably be a pretty short post. With the exception of the first week of the month, November has been pretty boring. That’s not really a bad thing, although this could just be the calm before the storm. Pneumonia Update As I mentioned in the November 2nd…
This is Part 1 of 2 of the Epilepsy Awareness Month daily posts that Stacy has been posting on James’ Facebook page. Below are the facts for days 1 through 15. On the 30th I will post part 2 which will include the epilepsy facts for days 16 through…
Remember about a month ago when I asked if we should buy James a car? Even though James will never be able to drive, I thought it would be cool to buy an early ‘90s Mustang that the two of us could work on together and somehow modify so that…
Halloween I think this was only the second time in James’ life that we took him trick or treating around our neighborhood. It’s usually either too cold for him to be outside for long periods of time, or Halloween falls on a weeknight when he’s zonked from school and he’s…
This ought to be a short post. The is the second month in a row where not much has happened. It’s been kind of nice. We all needed a break from all of the chaos in July and August…in the hospital with pneumonia for a few days, back into…