This will probably be one of my shorter posts because not much happened these past couple of weeks. We’re still dealing with James’ crankiness. I hate to think that this is his new ‘norm’. There’s got to be something causing this. Maybe the VEEG on the 8th will reveal something. Who knows?
Birthday Party
Last weekend we went to a birthday party for the son of one of Stacy’s best friends when she was growing up. It was good for her to catch up with some people she hasn’t seen in a while. A few of the kids at the party were interested in James and asked questions about him. We tried our best to explain James’ medical issues in simple terms that five-year-olds could hopefully understand. Some of them seemed sad for James, which is okay, I guess. I think it’s good that the kids are curious about James and aren’t afraid of him. I also think that it’s good that kids are introduced to other kids like James so that maybe they will feel more comfortable around someone with disabilities later in life.
Spring Sing
School has still been a little bit of hit and miss because of his ongoing high heart rate, congestion, and irritability issues. Stacy made sure that he was at school on Wednesday for the kids’ end of school year “Spring Sing”. We received a little bit of a bonus for sending him to school on Wednesday. Stacy received the email below from the occupational therapist (OT) that works with James at school. I redacted the names in the email for privacy reasons.
Even though he’s been missing a bunch of school lately, he’s still rocking it!
I am very thankful that Stacy took a video and some pictures at James’ Spring Sing because I was at work. Here are a couple of pictures and the video that she took: