Maybe sending James off to school last week was too much for his body and immune system to handle. He seemed fine last week, and he seemed fine Monday when he went to school. But that changed Monday afternoon. His sats were all over the board and his heartrate was…
After months of anxiety and worry about James starting school, it finally happened. He just finished his first week as a preschooler. We weren’t sure if he was going to make it to the first day, though. He was very snotty and congested on Monday. Since Monday was Labor Day,…
Birthday Boy As of Wednesday, James is officially 3 years old. It’s really kind of hard to believe. It’s been a long 3 years, but here we are. I have to give Stacy a lot of credit. She has been an awesome mom, caregiver, and nurse to James. Now that…
Although James doesn’t officially turn 3 until Wednesday, we had his birthday party this weekend. Stacy had been thinking about a theme for the past several months. The theme for his 1st birthday was monkeys; his 2nd birthday was Handy Manny; this year she decided on a Dr. Seuss Theme.…
We went to Back to School Night at James’ school on Monday night. Seems silly to say “back to school” when he hasn’t even started school yet, doesn’t it? For preschoolers who are just starting school, it should be called “Welcome to School Night”, or “Welcome to the First of…
VNS We took James to the neurologist on Thursday to further discuss the VNS (vagus nerver stimulator). The neurologist pulled up James’ last VEEG for us to look at. He pointed out all of the spikes and where they were coming from. Because the seizures are coming from many parts…
Fundraiser Update We want to thank all of you that have donated to James’ fundraiser and shared the link to the donation page. As of yesterday, we have raised $3,330. We’re not quite halfway to our goal, but we’re still extremely grateful for all of your support. https://www.indiegogo.com/projects/let-s-get-james-a-new-ride#/ If you…