Read more about the article Fundraiser News, Neuro Appointment, and First Rock Show
Showing Off His Backstage Pass

Fundraiser News, Neuro Appointment, and First Rock Show

Fundraiser News As I mentioned in last week’s post, Stacy had a phone interview with a local radio personality to discuss the fundraiser that we’re currently having to try to raise money for James’ medical expenses and a van. Unfortunately, it does not look like the interview is going to…

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Read more about the article 02 Boost, Tub Dipper, Stacy on the Radio?
James and Daddy

02 Boost, Tub Dipper, Stacy on the Radio?

A Little Boost of Oxygen James had been doing so well since he had his adenoids and tonsils removed in April, but this past Wednesday Stacy had to put him on some oxygen because he was a bit congested and having a hard time breathing. After about 4 hours of…

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Read more about the article Building a Shed, Pulmonology, a Racecar Sponsorship, and 4th of July
Fans of James Has Gone Racing

Building a Shed, Pulmonology, a Racecar Sponsorship, and 4th of July

A New Shed We’ve been spending our weekends working on replacing our shed. When we bought our house last year, it came with a rickety, old plywood shed. While it served its purpose, it was a bit small, had some holes where animals had chewed through it, and felt like…

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Read more about the article It’s Been a Calm Couple of Weeks
Hanging off the Bed

It’s Been a Calm Couple of Weeks

Hey all. Sorry it has been a couple of weeks since my last James post. (Yesterday’s venting post doesn’t count). I know I said that I was going to try to keep up with the weekly posts, but the last couple of weeks have been pretty quiet around here. We…

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I Just Need to Vent

I want to start off by saying that Stacy and I are pretty easy-going people. It takes a lot to get us upset about something. If you have been following James’ story, you are probably well aware that we are under a lot of stress. Our world was turned upside…

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Weight Check, MEG Scan and MRI

Weight Check It’s been a very busy week for James. Mommy and daddy, too. On Tuesday he went to the GI for a weight check in. He weighed in at 33 pounds and is 35 inches long. The doc said that James is at the higher end of normal weight…

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Botox, IEP, and Nursing

Botox James’ regular ENT had recommended we consult with another ENT about getting Botox injections in his salivary glands as a way to help reduce his secretions. Stacy and James met with her on Wednesday. She went over the treatment and the possible side effects, such as bleeding, infection, and…

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