Shame on You Joy Behar

“What an insult to ANYONE who suffers from seizures!!She made a complete ASS of herself!! Having a seizure regardless of your age is no joke! To say on TV no less she would "fake a seizure" to get out of being a bridesmaid... WTF is wrong with people!!! Seizures suck…

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Papa Made James a Therapy Box

If you’ve read some of my previous posts about James’ therapies, you might remember some videos of James during vision therapy where he is surrounded on three sides by dark walls. Stacy was describing it to her dad, who is legally blind, and he decided to make one for James.…

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Chiropractor Appointment

James has been going to the chiropractor regularly for the past several months and we really think he’s helping James with his head lifts. Here are a couple of pics of James at the chiropractor today. I’ve included a video below of James lifting his head while on Stacy’s shoulder…

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Starting the Keto Diet

About a month ago we started discussing putting James on the ketogenic diet for his spasms/seizures. Over the course of the past month, we have met with doctors and a nutritionist to hash out all of the details about the diet. Today marks day 1 of this diet. We have…

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Is James Trying to Keep Nursing Care?

Sometimes I think James understands more than we think he does. Last week Stacy was told that we might be losing nursing care because James has been so healthy. James must have overheard mommy and daddy talking about it and decided that he would show them. Shortly after midnight on…

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We May Be Losing Nursing Soon

Ever since James came home from the NICU in October of 2009, we have had lots of support from various services. We have home health from the hospital which provides all of James equipment (pulse ox, suction machine, nebulizer for breathing treatments, oxygen tanks, etc.); we have early intervention (EI)…

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May is Pediatric Stroke Awareness Month

  Because it is believed that James had a stroke before he was born, Stacy joined a pediatric stroke group on Facebook. A woman in that group put together a video to celebrate many of the kids who are stroke survivors. The video includes many facts and statistics about pediatric…

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