Stacy’s parents gave James a Christmas present a few days early and we decided to try it out tonight. It’s a Water Way Babies neck flotation ring. It’s an inflatable ring that fits around James’ neck and holds his head above water. Since he is unable to hold his head…
I have a favor to ask of all of you. Please say a prayer for James. It looks like he is starting to get sick again. We’re hoping this isn’t a repeat of the end of November when he spent six days in the hospital because of respiratory distress. So…
With Christmas less than two weeks away, we thought we should start putting up some decorations. I thought we had taken more pictures, but I only managed to take a few pics of Stacy and James as they were watching me put up the tree. I’m sure you just wanted…
One year ago today, a local boy, Danny, died in his sleep from Sudden Unexplained Death in Epilepsy (SUDEP). He was only 4 years old. Although we didn’t know him personally, his story and his death really hit me. Could this happen to James? For the first two years of…
If you read yesterday’s post, it was a feel-good story. Today I wanted to share a feel-good, but also sad story. It’s about a little boy named Dax who was born in June of 2007. When he was just over a year old, he was diagnosed with acute myeloid leukemia…
Stacy found a nice article that I wanted to pass on. There is a 4-month-old boy, Seth, who was diagnosed with Complete DiGeorge Syndrome, which is a rare and fatal condition that inhibits the body’s immune system. There is a potentially lifesaving surgery that Medicaid will not cover, because they…
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