Another Adjustment to Infantile Spasm Meds

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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You Find Out Who Your True Friend Are

I stole this from Stacy’s Facebook: “Something I've learned since James has been born...you really find who your true friends are when your life changes! Whether they stick around with the change or they drop like flies because it's too much for them! Oh well!!”Stacy For those of you that…

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First Haircut

James had his first haircut today. I don’t remember my first haircut, but I have seen the pictures. I was sitting in a highchair in my grandma’s basement. Since James isn’t able to sit up on his own and can’t hold his head up, putting him in a highchair wasn’t…

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Appointment with Audiologist

When James was in the NICU they tried to test his hearing on several occasions. For various reasons (possible interference with medical equipment, too many distractions with the machines beeping), they were never able to get any results from any of the hearing tests. After the third or fourth failed…

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Read more about the article Speech Therapy
Speech therapist trying mint on James' tongue

Speech Therapy

James had speech therapy today. The therapist is still trying to work on his suck/swallow reflex. Today she tried a little mint on his tongue to see if he would have some sort of a reaction. Unfortunately, he didn’t appear to react at all. The therapist will keep trying different…

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Infantile Spasms Med Adjustment

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Read more about the article Happy Mother’s Day
Stacy and James

Happy Mother’s Day

Today is Mother’s Day and I wanted to send a special shout out to Stacy. She has been such an amazing mom to James. From the moment she wakes up, to the moment she goes to sleep…and sometimes in the middle of the night…it’s all about James. She is so…

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