After James was diagnosed with infantile spasms (IS), both Stacy and I started looking up all of the information we could find about infantile spasms. Stacy even joined an infantile spasms support group on Facebook. One of the women in that group just lost their son due to complications from…
Stacy found some statistics about cerebral palsy in the United States that I thought I would share. According to cerebralpalsy.org: About 764,000 children and adults currently have Cerebral Palsy About 500,000 children under the age of 18 currently have Cerebral Palsy About two to three children out of every 1,000…
James had physical therapy today. Since he can’t move much on his own, we think it helps to stretch his muscles and maybe help him realize that this is how his body moves. Here are a few pics of the therapist working her magic. James…
Stacy bought James a shirt for Stroke Awareness Month. I apologize if this offends anyone, but sometimes you just need a little humor to offset all of the bad stuff. They say that laughter is the best medicine, right? In all seriousness though, stroke is not something to take lightly.…
Traveling with a disabled child is a bit of a challenge sometimes. It’s not just a car seat and a stroller. It’s a car seat, a stroller, the pulse ox, and the suction machine. And if we happen to be travelling during a feeding/med time, it is also the feeding…
Tomorrow is May 1st which is the start of Stroke Awareness Month. Did you know that in 2008 stroke was the fourth leading cause of death in the United States, accounting for 133,750 deaths? When we think about someone having a stroke, we usually picture an older person. My dad…
No matter how bad things may seem, they can always be worse. And no matter how bad you think your life is, there is somebody that has it worse off than you. Please take a moment and reread those first two sentences. Now stop and think about those sentences for…