I heard a song today that I’ve probably heard a hundred times before, but today it got me thinking. The song “Don’t Laugh at Me” by Mark Wills talks about being different and how other people see you and asks that you don’t laugh at them. James is a lot…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
James had a couple of doctor appointments today. He went to see the gastroenterologist to get a new Mic-Key button put in. The Mic-Key button is James’ g-tube that he uses for feeding. Stacy said that the process to remove the old one and put in the new one is…
I didn’t realize this until we had James, but being a mom is a lot of work. I don’t think I have given my own mom enough credit for everything that she did when me and my sister were growing up. I kind of think that I took her for…
James is now completely weaned off of ACTH. Unfortunately, it did not work for him. There was very little change in his infantile spasms. We were originally going to switch to Sabril/vigabatrin, but after reading over the paperwork that we had to sign before he could start taking it, we…
Since we’ve become part of the ‘special needs community’, we frequently come across special needs related stuff that we would otherwise just scroll right past. I guess it’s kind of like when you’re looking for a new car and like a certain make and model. Then you start seeing them…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…