School You know, it kind of sucks when you’re so dependent on someone else. James is 100% dependent on others to provide his feedings, change his diaper, give him his medications, etc. That’s why he has a one-on-one nurse at school. But if there isn’t a nurse, he can’t go…
As promised, here are pictures from James’ 13th birthday party. It’s been a couple of years since we’ve had an actual party because of Covid. In 2020, we arranged a birthday parade where people drove by our house to wish James a happy birthday and drop off gifts. Last year…
A week and a half ago Stacy started a countdown on James’ Facebook page leading up to his 13th birthday. Each day she has been posting pictures from his birthday parties, in chronological order. It’s been fun to look back to see how much he has grown, and the themes…
Pneumonia For the first several years of his life, James would usually come down with pneumonia around Thanksgiving. It was such a normal occurrence that Stacy started calling November Pneumo-ember. A little play on words, combining pneumonia and November. I don’t know what changed, but for the past few years,…
New Van Sticker Shock A couple of months ago I shared some of the issues we were having with our current wheelchair accessible van, the cost for repairs, and that we were starting to think about getting a new one. While there are many different kinds of vehicles available that…
School James was supposed to start summer school, but as I mentioned in my last post, his one-on-one school nurse wanted to take some time off for the summer. Unfortunately, the nursing agency has been unable to find a replacement. Until they do, it looks like James will be stuck…
Van Issues I was one of those people who wasn’t sure what they wanted to do when they grew up. After I graduated high school, I bounced around to a few local schools trying to figure it out. Before I decided to pursue a career in IT, I did about…