NICU Day 23 I didn't post yesterday because the only update was that they bumped his feeds from 25 ml of breastmilk over 3 hours up to 35 ml over 3 hours. He weighed in at 7 pounds and 9 ounces. NICU Day 24 After I got to…
They bumped his feeds from 20 ml to 25 ml over 3 hours. With the NG- and NJ-tubes that were inserted in his nose last night, he will start getting his meds through the NG-tube and his feeds through the NJ-tube. If you didn’t read yesterday’s post, the NG-tube goes…
James had some blood tested a few days ago for long chain fatty acids and it came back normal which means that he does not have adrenoleukodystrophy…thank God! Adrenoleukodystrophy (ALD) is a rare genetic condition that causes the buildup of very long chain fatty acids (VLCFAs) in the brain. When…
The occupational therapist (OT) came to see him and work on his swallowing. She was trying to work his throat muscles to strengthen them. The bumped his feeds up to 20ml of breastmilk over 3 hours. My mom popped in to see Stacy and James while I was at work.…
An infectious disease doctor stopped by to look over James and said that everything looks good. He seemed to handle the 10 ml of breastmilk yesterday without any issues so they bumped him up to 15 ml over three hours.
The blood test James had a couple of days ago did not show any infection so they took him off the antibiotics. They took him off oxygen at 8:00 am this morning, but decided to put him back on a minimal amount of oxygen at around 8:00 pm to…
They put James on two antibiotics: piperacillin for the possible pneumonia that they saw on his x-ray yesterday, and vancomycin in case there is a bacterial infection in his intestines that may be causing his feeding issues. He is on oxygen, but a very low amount. He has been having…