This is the second part of the Cerebral Palsy Awareness Month daily facts that Stacy has been sharing on James’ Facebook page and will include the daily facts for days 16 through 31. If you missed the first part that covered days 1 through 15, you can view it here.…
March is Cerebral Palsy Awareness Month. If you follow James on Facebook, you’ve probably seen the daily CP facts that Stacy has been posting. This is part 1 of 2 of a collection of those posts and will include the first 15 daily facts. I will post part 2 at…
VNS Replacement As I mentioned in my last post, while James was down at Rush Hospital on February 20th and 21st for an overnight VEEG, the neurologist scanned his VNS and noticed that the battery was almost dead. The VNS does not have a replaceable battery; the whole device needs…
This is part 2 of the Cerebral Palsy Awareness Month posts that Stacy has been posting daily on James’ Facebook page. If you missed Part 1, you can view it here. Thanks again Firefly for putting these facts together to help raise awareness about CP. Day 16 *This is…
Welcome to part 1 of 2 of the Cerebral Palsy Awareness Month daily facts that Stacy has been posting to James’ Facebook page. Below are the facts from the first 15 days of the month. I plan to publish part 2 of these facts, which will include days 16 through…
Illness Update Not much to report about James latest bout of pneumonia and GI issues. He seems to be doing a little bit better every day. Just taking it one day at a time and slowly adding formula back into his feeds. We’ve learned not to push James too hard.…
I really need to get better at posting some events before they happen. October 7th was World Cerebral Palsy Day, so the above picture probably should have been posted in my October 4th post, not two weeks after it happened. Stacy almost dressed James in a Cubs shirt on the…