Read more about the article Tattoos and Surgery
James' Tattoos

Tattoos and Surgery

Last Monday one of James’ therapists gave him some of those temporary tattoos. Now all three of us have tattoos.     Tuesday was a bit interesting. Stacy took James to see the ENT to discuss replacing his ear tubes (one of them is working its way out), talk about…

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Read more about the article We Were on the News
Stacy and James Wearing Purple for Epilepsy Awareness

We Were on the News

Monday was Epilepsy Awareness Day. I know I gave you very short notice, but did you wear purple? We did:       Be prepared to wear purple again during May, which is pediatric stroke awareness month, and they also use purple as their color. On Thursday Stacy took James…

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Talking About a Trach Again

On Monday James went to the pulmonologist and a hematologist to go over the blood tests he had last week. For those of you who don’t know, a pulmonologist deals with the lungs, and a hematologist specializes in blood and blood disorders. They still think the high liver enzymes is…

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3 Blood Draws in 2 Days

I have donated blood in the past so I know that there is a limit on how often you can have blood drawn for donation. Is there a limit on how often a kid can have his blood drawn for testing? James had his blood drawn three times in two…

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Read more about the article Pink Eye and Clogged Ear Tube
Leave the Mullet or Cut It?

Pink Eye and Clogged Ear Tube

James went to the pediatrician on Tuesday with his mommy and his papa and he has pink eye. Fortunately, it’s not bad to the point that his eyes are crusted shut. The doc said it’s more like his eyes have a cold. Papa asked the doc if it was contagious,…

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Read more about the article Modeling, Doctor Appointment, and Seizures
Modeling for "Angel Kisses & Butterfly Wishes"

Modeling, Doctor Appointment, and Seizures

Modeling I think I mentioned in a previous post that James has been doing some modeling. Well, he had another gig on Wednesday. He’s not getting paid for it, but it’s for a good cause. A local organization makes unique items for children with special needs to help them feel…

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Ear Infection and Doctor Appointments

It’s been a relatively quiet couple of weeks, medically speaking, which is why I didn’t post anything last weekend. Last Sunday, however, Stacy noticed a little bit of red discharge in James’ left ear. She called the pediatrician and he thought it sounded like an ear infection. He prescribed an…

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