Gift Donation, A New Book, and the Bus

Welcome to 2017. Hope you all had a safe, happy, and healthy holiday. This is going to be a pretty short post because our lives have been pretty uneventful. Healthwise, James is doing okay. We’re still dealing with the seizures and his oxygen saturation levels have been a bit wonky…

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Read more about the article New Neurologist, SUDEP, and a Girlfriend?
2nd Grade school picture

New Neurologist, SUDEP, and a Girlfriend?

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Father and Son Project and the Weed Talk

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Read more about the article VEEG and Other Happenings
Head wrapped in gauze to help keep the EEG leads in place

VEEG and Other Happenings

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Medical Stuff, School, and Mother’s Day

Medical Stuff We’re still dealing with this “new James” that we don’t like. The high heart rate, congestion, seizures, and just all around unhappy. What we wouldn’t do to have our old James back. The one that was calm and mellow. We could even deal with the occasional curve ball…

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What is James Fighting?

What is James Fighting? We think that James is still fighting something, we just don’t know what. He seemed to be doing fine last week on Monday and Tuesday, but on Wednesday afternoon Stacy got a call from the school that James wasn’t doing well, and she went to pick…

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Read more about the article Another Illness Along with Some Positive News
Chillin' with his Mommy

Another Illness Along with Some Positive News

It’s been a rough few weeks around here. If you recall, James had a fever a couple of weeks ago…or was it a month ago? Sometimes it feels like the days all merge together and I lose track of what day it is. Looking back at Stacy’s notes, he had…

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