James has not been doing well since his VNS surgery on September 24th. For the first couple of days after surgery we though it was just pain and discomfort from the surgery. Then he started to return to his old self. Then he took another turn and started to get…
Fundraiser News As I mentioned in last week’s post, Stacy had a phone interview with a local radio personality to discuss the fundraiser that we’re currently having to try to raise money for James’ medical expenses and a van. Unfortunately, it does not look like the interview is going to…
A New Shed We’ve been spending our weekends working on replacing our shed. When we bought our house last year, it came with a rickety, old plywood shed. While it served its purpose, it was a bit small, had some holes where animals had chewed through it, and felt like…
Weight Check It’s been a very busy week for James. Mommy and daddy, too. On Tuesday he went to the GI for a weight check in. He weighed in at 33 pounds and is 35 inches long. The doc said that James is at the higher end of normal weight…
Botox James’ regular ENT had recommended we consult with another ENT about getting Botox injections in his salivary glands as a way to help reduce his secretions. Stacy and James met with her on Wednesday. She went over the treatment and the possible side effects, such as bleeding, infection, and…
Surgery Follow-Up James had his post-surgery follow-up appointment on Monday. The ENT said everything was healing perfectly. His ears, nose, and throat all look wonderful. The doctor gave us a recommendation for a doctor that does Botox in the salivary glands to help with secretions. We had never heard of…
Surgery Recovery Update I think James is pretty much fully recovered from his ear tube, tonsillectomy, and adenoidectomy surgeries. Day 5 through day 10 or so were a bit rough, but these past few days he seems so much better. He’s breathing so much better, too, now that those overgrown…