Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
James had another EEG today to see if the ACTH injections are working. Unfortunately, the EEG showed only a little progress, so the neurologist wants to increase the dose from 0.50 mg to 0.75 mg once a day. We’ll follow up in another two weeks to see if the increased…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…
So, it looks like we will be taking James to the hospital tomorrow to start the ACTH shots for his infantile spasms. They need to get a heart EKG baseline before they start the treatment and want to monitor him for 24 hours to make sure he does not have…
Hallelujah! It looks like Blue Cross Blue Shield came through for us. Stacy received a call today from some pharmacy called Curascript and said that the ACTH shots were approved, it will cost us $35.00 and they will be delivered to the house. Holy crap! I don’t know how…
If you read yesterday’s post, you know our dilemma. If not, let me give you a brief synopsis of our situation. James was diagnosed with infantile spasms, which are a type of seizure in babies. The neurologist prescribed ACTH, which is supposedly the best drug to treat infantile spasms. Unfortunately,…