Shame on You Joy Behar

“What an insult to ANYONE who suffers from seizures!!She made a complete ASS of herself!! Having a seizure regardless of your age is no joke! To say on TV no less she would "fake a seizure" to get out of being a bridesmaid... WTF is wrong with people!!! Seizures suck…

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Starting the Keto Diet

About a month ago we started discussing putting James on the ketogenic diet for his spasms/seizures. Over the course of the past month, we have met with doctors and a nutritionist to hash out all of the details about the diet. Today marks day 1 of this diet. We have…

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A Rough Couple of Weeks

James has been having a rough couple of weeks since his “berry surgery” on February 3rd. He had a lot more secretions than normal and an elevated heart rate the day after surgery. Then his bowel movements weren’t as frequent as they normally are. This was followed by some breathing…

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Sudden Unexplained Death in Epilepsy (SUDEP)

One year ago today, a local boy, Danny, died in his sleep from Sudden Unexplained Death in Epilepsy (SUDEP). He was only 4 years old. Although we didn’t know him personally, his story and his death really hit me. Could this happen to James? For the first two years of…

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Started Taking Banzel

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Stopped Taking Sabril

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Great News About Infantile Spasms

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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