So, it looks like we will be taking James to the hospital tomorrow to start the ACTH shots for his infantile spasms. They need to get a heart EKG baseline before they start the treatment and want to monitor him for 24 hours to make sure he does not have…
Hallelujah! It looks like Blue Cross Blue Shield came through for us. Stacy received a call today from some pharmacy called Curascript and said that the ACTH shots were approved, it will cost us $35.00 and they will be delivered to the house. Holy crap! I don’t know how…
If you read yesterday’s post, you know our dilemma. If not, let me give you a brief synopsis of our situation. James was diagnosed with infantile spasms, which are a type of seizure in babies. The neurologist prescribed ACTH, which is supposedly the best drug to treat infantile spasms. Unfortunately,…
Are you fricking kidding me?! Fricking was not the word I wanted to use, but I thought I should keep it clean. I really wanted to use another “F” word…and a few other four-letter words. Before I get into why I started this post with such strong language, let me…
Well, crap! James had an appointment with his neurologist today and when Stacy showed him the video of James’ "quirks", he thought they looked like infantile spasms and wants to treat them as such until we get a confirmation EEG. Wait a minute! Let’s back up for a second. On…
James had an EEG this morning to test for this new “quirk” he started doing last week. We’re calling it a quirk because we don’t know what they are. When we saw the neurologist on Monday, we tried to describe them the best we could. We said that James throws…