Memorial Day We had family over for a little BBQ on Memorial Day. It was a bit on the warm side so James spent most of the day inside where it was cool and watched some TV with his cousins. It’s hard to read, but his shirt says,…
I made a promise to myself—and to you, the fans—that I would try to do a better job at keeping up with blog posts and try to write one every week, or every other week. And I already screwed this up! Yesterday marked week two since the last post, but…
This post will be an attempt to catch up on the past several weeks. Life’s been pretty hectic around here with the fundraiser, the Easter weekend trip to the ER, and just life in general, so I haven’t had much time (or energy) to write. I’ll try to organize it…
I really thought that now that we’re into March the weather would start getting warmer. But Mother Nature just doesn’t want to give us a break. She teased us a few weeks ago when she gave us a couple of days in the 40s, but today, March 2nd, we barely…
School In my last post I mentioned that James had a rough weekend after all of our running around. We ended up keeping him home from school on that following Monday to give him another day to recover. Then he was right back at it working hard in school. He…
James is our little rockstar. We don’t know what changed this school year, but he’s making some awesome progress in physical therapy. Even at home when he isn’t required to work, he still shows us what he can do. I should probably put a little bit of a disclaimer in…
We had a very good meeting with a new pulmonologist on Thursday. He was very thorough, informative, and has put together a plan of action. His recommendation is to stop giving James one of the meds he is taking to help manage his secretions and instead use this special patch.…