Read more about the article Back to School for the Birthday Boy
The first day of his second year of preschool

Back to School for the Birthday Boy

James went back to school on Tuesday for his second year of preschool…or did he?     We have no idea how he was able to skip so many grades with all the school that he missed because he was out sick, but he is in Jr. High now.  …

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Read more about the article April Fools’, Doctor Appointments, Pulse Ox Recall, Photo Shoot, and a New Fundraiser
James dressed up like a teacher

April Fools’, Doctor Appointments, Pulse Ox Recall, Photo Shoot, and a New Fundraiser

April Fools' Day After James’ bad reaction to the generic breathing treatment last weekend, we weren’t sure what the beginning of this week was going to be like. We questioned if we should send him to school or let him relax at home for a few days. He was back…

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Read more about the article Nursing, Respite, Date Night, VNS, CBD
Stacy and James

Nursing, Respite, Date Night, VNS, CBD

Nursing With James being on leave from school due to illness and trying to keep him healthy, Stacy reached out to our insurance company to see if we qualify for nursing. All we really want is someone qualified to watch James for a couple of hours a week so that…

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Read more about the article Illness Update, First Wheelchair and Fundraiser Reminder
James' first wheelchair

Illness Update, First Wheelchair and Fundraiser Reminder

Some days I wish we had a soundproof room that we could go into and just scream and let out all of the frustration. As you know, James has been having a rough couple of weeks. We don’t know what the hell is going on with him. We just want…

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Read more about the article 02 Boost, Tub Dipper, Stacy on the Radio?
James and Daddy

02 Boost, Tub Dipper, Stacy on the Radio?

A Little Boost of Oxygen James had been doing so well since he had his adenoids and tonsils removed in April, but this past Wednesday Stacy had to put him on some oxygen because he was a bit congested and having a hard time breathing. After about 4 hours of…

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Happy New Year 2012

Happy New Year! I don’t know if it’s just me, but this past year seemed longer than normal. I guess now that I think about it, 2010 seemed like a long year, too. It probably has to do with all of the stuff we’ve been through since James was born.…

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Read more about the article History Did Not Repeat Itself This Year
At Home 2011

History Did Not Repeat Itself This Year

I hope I don’t jinx it, but it looks like we changed history…in a good way. On November 29th, 2009, James was three months old and was in the PICU (Pediatric ICU) with pneumonia.     On November 29, 2010, James was fifteen months old and was on the pediatric…

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