James has not been doing well since his VNS surgery on September 24th. For the first couple of days after surgery we though it was just pain and discomfort from the surgery. Then he started to return to his old self. Then he took another turn and started to get…
Amber Necklace We were hoping that James was going to go back to school this week, but something just wasn’t right with him. He had a rough couple of days after the VNS surgery, but by midweek he started doing much better. Then last Sunday he took a bit…
Maybe sending James off to school last week was too much for his body and immune system to handle. He seemed fine last week, and he seemed fine Monday when he went to school. But that changed Monday afternoon. His sats were all over the board and his heartrate was…
This is an update to last week’s New Pulse Ox and Another Illness post. Monday, the 14th, James was still working his way back to normal…slowly, but surely. Stacy had him on somewhere between 1/8 and ¼ liter of oxygen. His sats were a little wonky; he would be at…
When I first stated this blog, I was trying to post every day or every couple of days. Then I realized that the posts were sometimes really short, so I switched over to weekly posts. Sometimes even those seem a bit short. I ended up not posting anything last week…
James had a minor illness on the 31st, with a little bit of a fever, and some yellow “gunk” as Stacy calls it coming out of his nose. We gave him some Tylenol, kept up with the suctioning, and kept an eye on the fever. The next morning when he…
Sometimes I think James understands more than we think he does. Last week Stacy was told that we might be losing nursing care because James has been so healthy. James must have overheard mommy and daddy talking about it and decided that he would show them. Shortly after midnight on…