Read more about the article New Neurologist, SUDEP, and a Girlfriend?
2nd Grade school picture

New Neurologist, SUDEP, and a Girlfriend?

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Medical Stuff, First Baseball Game, Giving Back and a Friend’s Book

If you’re observant, you may have noticed that I am posting this on a Tuesday instead of a Sunday like I normally do. Sunday night Stacy and I went out for a nice BBQ dinner to celebrate our 12-year wedding anniversary. James has been having a rough few weeks (or…

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Read more about the article Stressed Out and Miscellaneous Happenings
Our little puzzle

Stressed Out and Miscellaneous Happenings

“Dear James, I do not want to be an adult anymore… Love your roommate, Mom” I worry that Stacy is reaching her breaking point. For the past month or so James has been struggling with a high heart rate (sometimes with low oxygen saturations and sometimes not), an increase in…

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What is James Fighting?

What is James Fighting? We think that James is still fighting something, we just don’t know what. He seemed to be doing fine last week on Monday and Tuesday, but on Wednesday afternoon Stacy got a call from the school that James wasn’t doing well, and she went to pick…

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Read more about the article A “Gift” from Tennessee and Easter 2016
Our temporary bathtub

A “Gift” from Tennessee and Easter 2016

A “Gift” From Tennessee? We had returned home from our Spring Break trip on Friday morning, the 25th. That Saturday Stacy started noticing bumps appearing on her hands and elbows. Sunday morning the bumps were showing up on other parts of her body and starting to turn red, almost like…

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Read more about the article Illness Update, CP & TBI Awareness Month, Spread the Word, and Girl Bosses
James with a Bugle on his finger

Illness Update, CP & TBI Awareness Month, Spread the Word, and Girl Bosses

Illness Update Not much to report about James latest bout of pneumonia and GI issues. He seems to be doing a little bit better every day. Just taking it one day at a time and slowly adding formula back into his feeds. We’ve learned not to push James too hard.…

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