Read more about the article School, Medical Stuff, and an Upcoming Fundraiser
Wearing his Cubs hat for Sports Day at school

School, Medical Stuff, and an Upcoming Fundraiser

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Read more about the article VEEG and Other Happenings
Head wrapped in gauze to help keep the EEG leads in place

VEEG and Other Happenings

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Birthday Party and Spring Sing

This will probably be one of my shorter posts because not much happened these past couple of weeks. We’re still dealing with James’ crankiness. I hate to think that this is his new ‘norm’. There’s got to be something causing this. Maybe the VEEG on the 8th will reveal something.…

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Medical Stuff, School, and Mother’s Day

Medical Stuff We’re still dealing with this “new James” that we don’t like. The high heart rate, congestion, seizures, and just all around unhappy. What we wouldn’t do to have our old James back. The one that was calm and mellow. We could even deal with the occasional curve ball…

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Read more about the article Stressed Out and Miscellaneous Happenings
Our little puzzle

Stressed Out and Miscellaneous Happenings

“Dear James, I do not want to be an adult anymore… Love your roommate, Mom” I worry that Stacy is reaching her breaking point. For the past month or so James has been struggling with a high heart rate (sometimes with low oxygen saturations and sometimes not), an increase in…

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What is James Fighting?

What is James Fighting? We think that James is still fighting something, we just don’t know what. He seemed to be doing fine last week on Monday and Tuesday, but on Wednesday afternoon Stacy got a call from the school that James wasn’t doing well, and she went to pick…

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Read more about the article A “Gift” from Tennessee and Easter 2016
Our temporary bathtub

A “Gift” from Tennessee and Easter 2016

A “Gift” From Tennessee? We had returned home from our Spring Break trip on Friday morning, the 25th. That Saturday Stacy started noticing bumps appearing on her hands and elbows. Sunday morning the bumps were showing up on other parts of her body and starting to turn red, almost like…

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