Read more about the article A Little Pneumonia Won’t Stop This Kid
Pulse Ox

A Little Pneumonia Won’t Stop This Kid

I hope I don’t jinx it by saying—or writing—this, but James seems a bit different this year. Last year he spent so much time home from school because he was sick. It got to the point that we started to think that he was either allergic to school, or he…

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Read more about the article The School District is Buying James a Chair?
Cherie Runs 4 Me; Together We Can Do Anything

The School District is Buying James a Chair?

If you saw a woman walking down the sidewalk with an empty stroller, what would you think? Would you be concerned that maybe they left their kid somewhere? Or would you feel sad for them because maybe they lost their child (as in passed away), and taking the empty stroller…

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Read more about the article Working Hard at School (and at Home)
Enjoying the weather outside with his teacher and their classroom guinea pig

Working Hard at School (and at Home)

James is our little rockstar. We don’t know what changed this school year, but he’s making some awesome progress in physical therapy. Even at home when he isn’t required to work, he still shows us what he can do. I should probably put a little bit of a disclaimer in…

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Read more about the article Tattoos and Surgery
James' Tattoos

Tattoos and Surgery

Last Monday one of James’ therapists gave him some of those temporary tattoos. Now all three of us have tattoos.     Tuesday was a bit interesting. Stacy took James to see the ENT to discuss replacing his ear tubes (one of them is working its way out), talk about…

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Read more about the article Seizures/Diet, Therapy Art, and Stroller Giveaway
Art Project in Therapy

Seizures/Diet, Therapy Art, and Stroller Giveaway

Seizures/Diet With James’ seizures getting pretty bad about a week ago, we thought maybe he was going through withdrawal from the keto diet. On Monday we introduced a couple of things to his diet to see if they would help with the seizures…Reliv Classic and Reliv Now for Kids. Nothing…

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Spasm Caught on Video

Last week at James’ neurology appointment, the doc made a couple of med changes, one of which was to take James off of one of the seizure meds this week. Tuesday was his last day of that med, but his spasms are still crazy. They happen so quickly that we…

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