Christmas 2012

  • Post category:Holidays
  • Reading time:3 mins read

Hooray for us. We successfully made it through Christmas without a trip to the hospital. This past week wasn’t without it’s bumps, though.

The palliative nurse stopped by on Monday (Christmas Eve) for her weekly check on James. She said that James’ lungs sounded a little wet, and he’s a bit congested. Stacy left a message with pulmonology to see what the pulmonologist recommended we do. The doc called back and prescribed a five-day round of steroids, and wanted to make sure we were giving James breathing treatments.

James had a good night’s sleep Monday night…better than the night before. Every day this week he seemed to get just a little bit better. We don’t know if it was the steroids kicking in or what, but he has been off of oxygen since he started taking it. Six days without oxygen. Now that he’s finished the round of steroids, lets see if he can stay off the oxygen.

 

Christmas

Here is a video and some pictures from Christmas:

 

 

 

Holiday greeting card featuring James in festive pajamas lying on a pillow with a stuffed animal, with a green banner below reading “Merry Christmas — Love, Stacy, Jeff and James!!” in a cheerful seasonal design.
Merry Christmas from our family to yours

 

James wearing red Christmas pajamas decorated with snowmen and trees, relaxing in his Nap Nanny on a carpeted floor while holding a colorful sock‑monkey toy, surrounded by wrapped gifts and a festive holiday gift bag.
James with his gifts

 

James lying in his Nap Nanny with a Batman‑themed outfit with the yellow bat symbol laying on top of him, while Jeff kneels behind him and holds up a matching black T‑shirt featuring the same Batman logo in a home setting with colorful bedding in the background.
James and Daddy got Batman shirts

 

James in red snowman‑print pajamas lying on the floor while Jeff holds up the children’s book “That’s Not My Snowman,” surrounded by wrapped Christmas gifts, a digital clock reading 9:09, and small decorative holiday trees in the background.
That’s not my snowman… book

 

James wearing red holiday pajamas with snowmen and Christmas trees looking at a yellow “Curious George Board Book Collection” box being held up by Jeff, surrounded by wrapped gifts and festive decorations in a cozy living‑room setting.
Curious George Book Collection

 

James wearing red holiday pajamas with snowmen and holly patterns looking toward a dark shirt being held up that reads “I LOVE MY AUNT,” surrounded by wrapped and unwrapped gifts, ribbons, and a stuffed toy in a festive setting.
James loves his aunt

 

James lying on a monkey‑patterned sheet with monkey‑themed pajamas laying on top of him — a dark brown top with a cartoon monkey face and red pants covered in playful monkey designs.
Monkey jammies

 

James wearing festive pajamas lying on the floor with a stuffed animal nearby while Jeff holds up two DVDs — “Merry Madagascar” and an “8 Family Movies” collection — surrounded by torn wrapping paper, a TV playing a cartoon, and holiday decorations on a wooden entertainment center.
Movies

 

Stacy and I were joking that we may need to start celebrating Christmas in July since James seems to do much better in the warmer months than in the cold ones. He wasn’t able to spend Christmas with his grandparents, aunts, uncles, and cousins this year. I did sneak out for a couple of hours on Christmas eve to have dinner at my mom’s while Stacy and James stayed home. Christmas Day Stacy went to see her family for dinner while I stayed home with James. Maybe next year James will be healthy enough that we can all go as a family.

I mentioned in the previous post that we were discussing keeping James home from school until February or March to keep him healthy and away from the germs at school. Stacy has submitted the paperwork to keep James home from school until March 4th. She also spoke with a nursing agency that might be able to come over once a week for a couple of hours to give Stacy a break. This will depend on if insurance will cover it. We had nursing care through insurance a while back, but it was short-lived. Without actually saying it, insurance basically said that we take too good of care of James that we don’t need nursing care. I’m really hoping that insurance will approve it. Stacy is going to need a mental health break.

Thank you all for all the prayers and well wishes. Keep them coming.