Well February came and went, and here we are in March. February was pretty uneventful around here, which isn’t a bad thing. We need that every once and a while. We always get a little bit nervous when James is good health wise for too long, though. We sometime refer to it as “the calm before the storm” as we wait in wonder to see if he’s going to throw some kind of illness at us. Fingers crossed that March stays quiet, too.

Cerebral Palsy Awareness Month

Stacy normally posts daily facts about cerebral palsy every day in March on the Fans of James FB page because March is CP Awareness Month. Before I sat down to write this post, I glanced at the FB page and realized that she hadn’t posted anything about CP Awareness Month except for the fundraiser she is having. More on that later. I asked her if she was planning on posting the daily facts like she normally does and she said that she will, so If you follow James on Facebook you should start seeing them soon. As for me, I am going to do my usual routine when we have an awareness month and post the daily facts for the first half of the month on the 15th or 16th and the daily facts for the second half of the month on the 31st or April 1st.

Now, about that fundraiser. Stacy is having her annual Thirty-One Cerebral Palsy fundraiser where 20% of sales made through her special online party will be donated to the United Cerebral Palsy Center for Disability Services. If you’d like to do a little shopping for yourself (or friend or family member or neighbor) and help us raise some funds for this organization, you can check out the party here:

https://www.mythirtyone.com/627441/shop/Party/EventDetail/10518945

Medical Stuff

Nothing much to report here. As I mentioned above, James has been staying healthy. A couple of weeks ago we went to a routine neurology appointment for the seizure drug study that James is in. We only have three appointments left and we’ll be done with the study in September. We have been very pleased with this drug. The results have been amazing. I wish I could tell you what the drug is, but I’m not sure if I can while we’re still in the study. Perhaps after the study is over, I will tell you what the drug is.

For those of you who may be new here, James has been part of a study for a seizure drug that is currently only approved for those 12-years-old and older. The study is to test how the drug works in kids under 12. After seeing the massive reduction in James’ seizures since he has been on this drug, I really hope they get the approval to prescribe it to younger kids. We spent the past 8 years trying so many things trying to get his seizures under control and it looks like we finally found it.

Valentine’s Day

I couldn’t forget to post a picture of James in his special Valentine’s Day shirt. It’s kind of hard to read, but it says: “I WANT tubie YOUR Valentine”. Tubie is a term we use to refer to kids that are g-tube fed. Next to the word Tubie is a g-tube extension in the shape of a heart.