Here we are, halfway through Epilepsy Awareness Month. If you follow James on Facebook, you’ve undoubtedly already seen these epilepsy facts. For those of you that don’t follow James Facebook page (and I don’t know why you wouldn’t), Stacy has been posting these pictures every day this month and will continue to do so throughout November. This post will include days 1 through 15 and I’ll plan to post days 16 through 30 on the 30th.
Don’t forget about Stacy’s Thirty-One fundraiser benefiting the Epilepsy Warriors Foundation, which can be found here:
https://www.facebook.com/events/1749893725273794
Thank you Candlelight Concert for Epilepsy Awareness for creating these images to raise awareness about epilepsy.
Day 1
James had his 1st seizure 4 days before he was born and was officially diagnosed with infantile spasms (a form of epilepsy) when he was 5 months old.
Day 2
Am I reading this right? There are over 40 types and syndromes related to epilepsy?
Day 3
They used to tell us to put something in their mouth to prevent them from biting their tongue off, but I guess this has changed.
Day 4
Epilepsy, like so many other diseases, doesn’t care about your age or your race, or how much money you make.
Day 5
James is part of that 30%. We are still trying to find a way to control his 30-50 seizures a day. We’ve read some promising results from the use of medical cannabis, so that may be an option.
Day 6
I found this to be an interesting statistic. James has cerebral palsy and epilepsy.
Day 7
This is what keeps us up at night. We need to figure out something soon help James with these seizures, and all of the other kids and adults who suffer from them as well.
Day 8
We don’t know if James gets depressed or not because he cannot tell us. We imagine that he does, though, with all the crying he does after his seizures.
Day 9
We have shared this fact for a couple of years now and we wonder if that number is the same, or if it has gone up or down. Three million is a lot of people. And that is just in the United States. Imagine what that number is worldwide.
Day 10
Do you know someone who has epilepsy or has had a seizure? It’s pretty scary!
Day 11
300,000 children under 14. We’re not sure if this fact is still valid but that is a lot of kids!
Day 12
We couldn’t imagine what these men and woman have to deal with and see on a daily basis.
Day 13
There is no cure for epilepsy, but hopefully someday there will be.
Day 14
Stacy and I often do incorrectly call James’ epilepsy a disease.
Day 15
Here is the answer to my question on Day 9…there are 65 million people worldwide that have epilepsy.
