This is Part 2 of the daily epilepsy facts that Stacy has been posting on James’ Facebook page, and includes days 16 through 30. If you missed Part 1, or just want to review the first fifteen facts, they can be found here.
Stacy is keeping her Epilepsy Awareness Fundraiser open until December 6th, so if you are interested in buying something as a Christmas gift—or for yourself—you still have a little bit of time to place an order. She will be donating 20% to the Epilepsy Foundation Greater Chicago. If you would rather make a donation directly to this wonderful organization in James’ honor, their donation page can be found here.
Day 16
James’ VNS levels out the activity in his brain with a little shock of electricity every minute. We don’t 100% know if it’s still working or if it’s just a combo of things but seizures are still at bay!
Day 17
James was diagnosed with epilepsy after several bicycling seizures in the NICU.
Day 18
Day 19
Day 20
Seizures are horrible to watch, no matter if it’s a human or animal.
Day 21
Day 22
Epilepsy does not define a person. That person suffers from seizures and has epilepsy.
Day 23
I’m sure the cost has gone up since this fact was first published.
Day 24
We are thankful that James does not have horrible seizures and pray that he never does.
Day 25
James and all of his friends who suffer with seizures love hugs and kisses!! Don’t shy away from anyone, especially a special needs child.
Day 26
Day 27
We found a medication in 2018 that has helped control and reduce James’ seizures. As weird as it sounds, his seizures have been almost nonexistent since his spinal fusion surgery.
Day 28
James does not have Dravet Syndrome, but we have several friends whose little ones suffer from Dravet on a daily basis, and a few have passed away at a young age.
Day 29
There have been way too many little ones that we know that have passed away from epilepsy, or a combo between seizures and something else. This number to way too high!
Day 30
Hopefully we didn’t overwhelm anyone with these facts, and we educated a few of you that don’t know much about epilepsy.
