It is days like today that I wish I didn’t have to work. Yeah, I’ll admit it’s nice to be to get out of the house, go to work, and get a break from James and all of his needs. (Is that bad for me to say?) But at the same time, I wish I could be there for Stacy more. For the past 12 months (since he came home from the NICU), Stacy has been James’ primary caregiver. I am there to help out on nights and weekends, but Stacy is the one that is “on call” 24/7. I just wish I could be there for her more so that she doesn’t seem so overwhelmed.
Today she posted this on Facebook:
“I am thinking if James could swallow we wouldn’t be having such bad days but who knows!!! He is fine for the most part on his belly sleeping, but as soon as I flip him and put him in his chair to eat, he starts to have spasms that kick up SO MUCH JUICE I think he is drowning and then it turns into a crackle like sound and sats drop… I AM OVER THIS!!! Just wanted to vent :0)”
Stacy
James requires so much care that we can’t just hire a babysitter to give Stacy a break for a few hours. If anyone has any suggestions or ideas, please let us know. Or send us $1,000,000 so I can quit my job and help her out at home. I am not sure how much more of this she can handle.