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We gave James a second dose of Sabril tonight and so far, no reaction. Let’s hope it stays that way. And let’s also hope that this second dose is what James needs to finally get rid of these infantile spasms. I can’t tell you how aggravating this has been for us. Watching James have these spasms and feeling so helpless. If your child has, or is, suffering from infantile spasms, or seizures, then you know what I am talking about. If your child has not had them, you are lucky. We don’t wish these on anyone. They are almost painful to watch. We really hope that this second dose of Sabril finally kicks these spasms out of James’ system. It’s been 8 months since he was first diagnosed with infantile spasms. Eight long months.
Stacy has scheduled the video EEG (VEEG) for next week. We need to take James in to get the leads put on his head, pick up the VEEG equipment, bring him home and plug him in. Should be a bit of an experience, but we think it will be much easier than being stuck in the hospital for two days. At least we will be in the comfort of our own home. I’ll be sure to post pictures.
