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We are speechless. We have no words. Completely blown away. But before I get to the reasons why, I'd like to start by saying that we are thankful that James was healthy enough to have a normal Christmas. You see, last Christmas James was just getting over an illness so…
All I Want for Christmas is for James to Learn to Swallow That's a simple request, isn’t it? If you have been following James’ story, you know that he has been in the hospital on multiple occasions for respiratory distress. We’re pretty sure all of those hospital stays could have…
Stacy’s parents gave James a Christmas present a few days early and we decided to try it out tonight. It’s a Water Way Babies neck flotation ring. It’s an inflatable ring that fits around James’ neck and holds his head above water. Since he is unable to hold his head…
I have a favor to ask of all of you. Please say a prayer for James. It looks like he is starting to get sick again. We’re hoping this isn’t a repeat of the end of November when he spent six days in the hospital because of respiratory distress. So…
With Christmas less than two weeks away, we thought we should start putting up some decorations. I thought we had taken more pictures, but I only managed to take a few pics of Stacy and James as they were watching me put up the tree. I’m sure you just wanted…
One year ago today, a local boy, Danny, died in his sleep from Sudden Unexplained Death in Epilepsy (SUDEP). He was only 4 years old. Although we didn’t know him personally, his story and his death really hit me. Could this happen to James? For the first two years of…