So last night around 10:30 pm, we were awoken by James making noises through the baby monitor. I got up to see what was going on. He was having some of his spasms. But instead of the usual one or two, it was a large cluster of them. They seemed…
Is this ever going to get any easier? What are we doing wrong?! If you’ve been following James' story, you know that James has been in the hospital a couple of times for respiratory distress. We’ve been trying our best to care for him at home, but sometimes it feels…
Because of James’ many disabilities, we have enrolled him the state of Illinois early intervention program. Early intervention, or EI, is a program that assists children under 3 years old reach developmental milestones. Through EI James is getting occupational therapy (OT), physical therapy (PT), vision therapy, speech therapy, and hearing…
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So, it looks like we will be taking James to the hospital tomorrow to start the ACTH shots for his infantile spasms. They need to get a heart EKG baseline before they start the treatment and want to monitor him for 24 hours to make sure he does not have…
Hallelujah! It looks like Blue Cross Blue Shield came through for us. Stacy received a call today from some pharmacy called Curascript and said that the ACTH shots were approved, it will cost us $35.00 and they will be delivered to the house. Holy crap! I don’t know how…
James is celebrating his first Valentine’s Day in the adorable shirt that his aunt and uncle gave him. How cute is he? Valentine's Day was on a Sunday so we went out to lunch at a restaurant that is a short walk from our condo.