Because of James’ many disabilities, we have enrolled him the state of Illinois early intervention program. Early intervention, or EI, is a program that assists children under 3 years old reach developmental milestones. Through EI James is getting occupational therapy (OT), physical therapy (PT), vision therapy, speech therapy, and hearing…
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So, it looks like we will be taking James to the hospital tomorrow to start the ACTH shots for his infantile spasms. They need to get a heart EKG baseline before they start the treatment and want to monitor him for 24 hours to make sure he does not have…
Hallelujah! It looks like Blue Cross Blue Shield came through for us. Stacy received a call today from some pharmacy called Curascript and said that the ACTH shots were approved, it will cost us $35.00 and they will be delivered to the house. Holy crap! I don’t know how…
James is celebrating his first Valentine’s Day in the adorable shirt that his aunt and uncle gave him. How cute is he? Valentine's Day was on a Sunday so we went out to lunch at a restaurant that is a short walk from our condo.
This is going to be a short post, but I just wanted to give a shout out to all those that have donated to James’ medication fund. We are extremely grateful for all the love and support we have received, even from people we have never met. There are days…
If you read yesterday’s post, you know our dilemma. If not, let me give you a brief synopsis of our situation. James was diagnosed with infantile spasms, which are a type of seizure in babies. The neurologist prescribed ACTH, which is supposedly the best drug to treat infantile spasms. Unfortunately,…