This is an update to last week’s New Pulse Ox and Another Illness post. Monday, the 14th, James was still working his way back to normal…slowly, but surely. Stacy had him on somewhere between 1/8 and ¼ liter of oxygen. His sats were a little wonky; he would be at…
Stacy had been wanting to do something to raise awareness for epilepsy so yesterday she hosted a “Purple Party” where a bunch of our friends and family members came over and got purple hair extensions put in their hair. A special thank you to all that came out to support…
When I first stated this blog, I was trying to post every day or every couple of days. Then I realized that the posts were sometimes really short, so I switched over to weekly posts. Sometimes even those seem a bit short. I ended up not posting anything last week…
Fever I have to say that Stacy is becoming quite a pro when it comes to James. On Tuesday we switched James from the ketogenic diet—which we were trying as a treatment for his infantile spasms—back to formula. Prior to the diet, James was getting Similac Sensitive. Now we are…
“I am starting to get very pissed off at these stupid seizures!!! They have gotten worse and we have not done a single thing different!!! We are going to take him off the Keto diet next week and introduce a new med. I just want James to stop get frazzled...…
Well, it was only a month and a half late, but we finally had a birthday party for James. We bought a house in August, so we decided to postpone his party until we were moved in and had some time to get settled. This year’s birthday theme was Handy…
James went to see the neurologist on Thursday to check in to see how everything is going. Because James is still having frequent seizures/spasms, and the fact that James has lost so much weight, the neuro thinks we should take James off the ketogenic diet. Another failed treatment to get…