School A bit of bad news here. Going forward we will no longer be able to take videos of James at school. Apparently, this is because of a school district policy. It’s interesting because this wasn’t a problem in preschool which is part of the same district. We don’t know…
School Have I mentioned how happy we are that James and his one-on-one nurse are still together? The fact that she quit her job at one nursing agency and took a job at another agency so that she could be with him just blows us away. She has become more…
Kindergarten James started kindergarten this past week and I have some amazing news to share. I mentioned in a previous post that the school district decided to use a different agency to provide one-on-one nurses for kids like James that need them. That meant that James was not only…
Yesterday we celebrated James’ 5th birthday, and it was truly awesome. We always tend to go a bit overboard for his birthdays, but this was something else. A huge thank you to Party with the Warriors, Icing Smiles, the face painter, and everyone else that made this such a fun…
Birthday Party Next Weekend One week from today is James’ 5th birthday party. We’ve always aimed to make his birthday parties somewhat of a special event. With all of his medical issues, we just don’t know how many birthdays he is going to have. Stacy has become friends with several…
Stacy and I have always been big into road trips throughout our relationship. When we started discussing where we were going to go on our honeymoon, we decided to take the ultimate road trip…Route 66. Since we live outside of Chicago, we were able to drive it the whole way…
Essential Oils Work At the end of the last post, I mentioned that James had a rough weekend sats and heart rate-wise. A couple of compression vest treatments, and he was back to normal…for one night. The following night his pulse ox went off because his sats dropped below…