Stacy and I have been sharing updates about James with our family and friends on our personal Facebook pages since he was born. It’s an easy way to share quick updates about what is going on with him. We have received so many comments and so much support from those…
Please excuse me while I vent for a moment. I'm sure we've all heard someone say something about life not being fair for one reason or another. Maybe they didn't get a good grade on a paper they worked so hard on. Or they didn't get the job promotion they…
So last night around 10:30 pm, we were awoken by James making noises through the baby monitor. I got up to see what was going on. He was having some of his spasms. But instead of the usual one or two, it was a large cluster of them. They seemed…
Is this ever going to get any easier? What are we doing wrong?! If you’ve been following James' story, you know that James has been in the hospital a couple of times for respiratory distress. We’ve been trying our best to care for him at home, but sometimes it feels…
Because of James’ many disabilities, we have enrolled him the state of Illinois early intervention program. Early intervention, or EI, is a program that assists children under 3 years old reach developmental milestones. Through EI James is getting occupational therapy (OT), physical therapy (PT), vision therapy, speech therapy, and hearing…
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So, it looks like we will be taking James to the hospital tomorrow to start the ACTH shots for his infantile spasms. They need to get a heart EKG baseline before they start the treatment and want to monitor him for 24 hours to make sure he does not have…