James is still on the IV for his feedings. They are going to try breastmilk again tomorrow, but Stacy doesn’t think that he will keep it down. He is just making so many secretions and is getting suctioned every hour, sometimes multiple times an hour. They did a chest x-ray…
The nurses said that James had a good night’s sleep and didn’t have too many issues. He was having some difficulty keeping his sats up and his food down, so they decided to stop feeding him Stacy’s breastmilk and switched over to IV fluids. The geneticist took some more blood…
Family Meeting We had our family meeting this morning in a conference room close to the NICU. My parents, Stacy’s parents, doctors of various specialties, a NICU nurse and a social worker were there to discuss James, what they know so far, and what they think the plan should be…
After two weeks off from work, I went back to work full time. It’s going to be rough to work all day and then go visit James and Stacy at the hospital, but I gotta do what I gotta do, right? Since I won’t be there every day, I will…
He was off oxygen today! The night shift nurse made a few errors tonight. They’ve been checking the residual food in James’ stomach prior to his next feed to make sure he is digesting his food. The nurse didn’t do this tonight. She also almost gave him 50 ml of…
Apparently James had a rough night last night. He had three or four of what we call ‘spells’ where his sats dropped. Sats refer to the level of oxygen in the blood. A "normal" reading is between 95 and 100 percent, but this normal reading can vary depending on the…
A pediatric hematologist stopped by today to talk to us about getting tested for factor V. If you recall from my post a couple of days ago (NICU Day 8), one of James’ blood tests revealed that he has factor V Leiden, which is a blood clotting disorder. James inherited…