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All Electrodes Are On

VEEG and Nursing

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Surgery Follow-up, Orthopedist, VEEG

Surgery Follow-Up James had his post-surgery follow-up appointment on Monday. The ENT said everything was healing perfectly. His ears, nose, and throat all look wonderful. The doctor gave us a recommendation for a doctor that does Botox in the salivary glands to help with secretions. We had never heard of…

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A Rough Couple of Weeks

James has been having a rough couple of weeks since his “berry surgery” on February 3rd. He had a lot more secretions than normal and an elevated heart rate the day after surgery. Then his bowel movements weren’t as frequent as they normally are. This was followed by some breathing…

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At Home VEEG

This was quite the experience. James had an at home video EEG (VEEG) over the past couple of days to record his seizure/infantile spasm activity. He is currently on 4 antiseizure meds to control his seizures and spasms which make him sleep most of the day. We’re hoping that we…

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